Sunday, March 09, 2008

Presidential forum on Disability

FEEL THE POWER OF THE DISABILITY VOTE!

Celebrate the 18th Anniversary of the ADA at a National Presidential Candidate Forum on Disability Issues


Saturday, July 26, 2008

Veteran's Memorial, Columbus OH

Free! Everyone welcome!

Hosted by: Ohio Disability Vote Coalition and major national sponsors


Additional information will be posted on JFActivist Blog.

Sunday, February 03, 2008

Ashley Treatment- Update

The Roving Activist has an update on her blog on the Ashley X issue. Some ADAPT activists protested a presentation by the Head of the Seattle Children's Hospital's Institutional Review Board (which makes decisions on medical research and experimentation).

Voluntary Suicide Bomber with Down's Syndrome?

I felt the need to express my anger and revulsion at the Iraqi people this week. There was another suicide bombing last week. This one was of note to me, as more information trickled in The suicide bomber mistimed the US convoy-- no damage occurred to Americans, only to herself. Subsequent information disclosed that it was two women with a disability-- believed to be Down's Syndrome.

Shame on the Iraqi insurgents-- the whole suicide bomber thing is a cultural orientation that we do not share. (I get that.) However, it is based upon personal choice and the ability to knowingly understand and consent. I am not so sure that the persons recruited were able to give consent and fully understand what it was they were suppose to do. (Evidenced by the person watching the convoy, letting it all go by, and then blowing themselves up.)

Or maybe they DID understand what was wanted of them, and did not want to do it. They may have seen they had no other option- failure would not be tolerated. There is a posting about this on JFActivist blog (on the left margin under Disability Diaspora)-- and some additional research which shows this is not an abboration, but an ongoing strategy.

Sunday, January 27, 2008

Man who uses Prosthetic Limbs disqualified from Olympics


Oscar Pistorius has been disqualified for Olympic competition due to his prosthetic limbs. These have been identified as giving him an unfair advantage over those without prosthetics.

Bob's House


Pepsi is running a 60 second spot, at the beginning of Super Bowl XLII, featuring deaf actors. The commercial has no sound, and tells a story of two guys trying to find the house of a friend, to watch the Super Bowl. This is unique in that it is centered around a deaf culture joke.. check it out!

Culturally sensitive and cool? Culturally cheesy? You decide!!

Disability Blog Carnival #30


Disability Blog Carnival #30 is up for your viewing, reading and listening pleasure.

Friday, January 18, 2008

uppity disability dot net: 1-14-08 Blogging Against Aversives


Uppity Disability has an excellent posting about public hearings in Mass. against aversives (legalized torture, physical pain and humiliation in the name of behavior control and correction).

uppity disability dot net: 1-14-08 Blogging Against Aversives

Please share your stories and support this initiative to recognize and respect the humanity of people with disabilities.

Sunday, January 13, 2008

The Death of Brent Martin


The following story has been brought to my attention from the Disability Studies blog:

A young man was the victim of random ugly violence in the UK. The tragedy of this situation was that he was targeted because he had a mental disability-- who could knock him down first-- on a bet. These three youth beat Brent Martin to death....


Please:

1. Share this information with as many people as you can. Education and awareness is a 24/7 job...evil never sleeps

2. Consider wearing a black armband in his memory-- and share the story when asked.

3. Post a comment to the online condolence book of his local newspaper

4. UK residents-- advocate for the full measure of the law to be applied. Send a message that all life is valuable-- all violence again all life must have grave consequences.

Saturday, December 22, 2007

Ransom Notes Ad Pulled!

The Disabilities Studies Blog has a post by Stephen Drake of the Autism Self Advocacy Network updating the situation. I am republishing it here...
------------------
I am pleased to inform you that this afternoon the NYU Child Study Center
announced that they will be ending the "Ransom Notes" ad campaign in response to widespread public pressure from the disability community. You can read that
announcement here.
The thousands of people with disabilities, family members,
professionals and others who have written, called, e-mailed and signed our
petition have been heard. Today is a historic day for the disability community.
Furthermore, having spoken directly with Dr. Harold Koplewicz, Director of the
NYU Child Study Center, I have obtained a commitment to pursue real dialogue in
the creation of any further ad campaign depicting individuals with disabilities. We applaud the NYU Child Study Center for hearing the voice of the disability community and withdrawing the "Ransom Notes" ad campaign.
-------------

Again, this goes to reinforce the power and importance of advocacy and how the Internet can get the word out, and mobilize a constituency group.

Hurrah!

Tuesday, December 18, 2007

Inspirations on the Internet

I have also started an additional blog-- focused on the motivational, and spiritual. Lots of Thomas Kinkade artwork and poems. It also has a great link for online Christmas Carols-- with sheet music and instrumental music.

Check it out!

"Ransom Notes" Ad Campaign Reinforces Stigma


There is an ad campaign by the New York University Childhood Center that is upsetting quite a few folks in the autism community. These ad presents ransom notes, threatening to 'make' someone autistic. There is an online petition, to speak out against it.

Wednesday, December 12, 2007

The Future Doc Wilson: The Real Meaning of Christmas..


As I was reviewing the traffic on my blog, one posting came up quite a bit. I re-read it, and can not improve on it-- so enjoy!The Future Doc Wilson: The Real Meaning of Christmas..

Fever as a Cure for Autism?

The following NPR story may be of interest:

NPR : Autism Study Lends Credence to Fever Effect


Several parents cite the subsidance of autistic traits when children have a fever. This is being studied further...
--------------------


Morning Edition, December 6, 2007 · For the first three years of his life, Rene Craft's son, Jackson, communicated primarily through screaming tantrums. He never spoke. He didn't point to things. He didn't make eye contact. He had the classic signs of severe autism.

Then a couple of years ago, Jackson got sick. His mother, Rene Craft, says he was running a high fever.

"He was lying in our bed, and he was recovering," Craft says. "And he said out of the blue, 'I like the sheets, Daddy. They're really comfortable.' And then later that day he looked out the window and he said, 'Oh, it's raining, and squirrels eat nuts."

Craft says that she and her husband got a brief glimpse of a son who had been locked in his own world of autism. Then the fever went away, and so did Jackson's improvement.

Craft isn't the first parent to notice the so-called "fever effect." Autism researchers have been hearing reports about it for decades.

Now a team from the Kennedy Krieger Institute in Baltimore has done a study that suggests the fever effect is real.

Laura Curran, Ph.D., is the lead author of the study, which appears in the current issue of the journal Pediatrics.

"We did find fewer autistic-like behaviors when kids had fevers," she says. "And as the fever disappeared, their autistic behaviors returned."

That wasn't true for every child. And the study included just 30 children, and relied on parents to fill out detailed checklists about each child's behavior.

Even so, Curran says it looks like parents have been right all along. She says she's not surprised.

"As a mother myself, I know no one knows their children better than the parents," she says. "And we've been hearing about these anecdotes for many, many years."

Now the question for researchers is how fever affects autism.

Dr. Andy Zimmerman of Kennedy Krieger says the answer probably involves the connections between brain cells — which many researcher believe is one place things go wrong in autism.

Zimmerman says that it's not the rise in a child's temperature that makes the difference. But it may be that brain connections work better in the presence of small proteins called cytokines that are produced by the immune system.

"We'd like to know what those cytokines are in children with autism when they get fevers, to see if one or more of these cytokines might be unusually increased," he says.

That might lead to a treatment that could mimic the beneficial effects of fever without actually making a child sick.

Craft believes researchers will find an answer, and it will help her son.

She says she has noticed that every time Jackson gets a high fever, he undergoes a dramatic change. He may ask to play a game, or make eye contact, or stop biting his hands until they bleed.

"Jackson runs into furniture with his head when he's upset or I question him," Craft says. "When he has a fever, those behaviors disappear."

Craft says she plans to enroll her son in a new study at Kennedy Krieger that will try to explain the fever effect.

. "There is something occurring in his brain that he needs, that he gets when he has a fever," Craft says. "I don't know what it is. That's for the doctors to figure out. But he's in there. He's waiting to come out."
-----------------------------------------

Other autism stories on Morning Edition, on NPR--

In Depth
Nov. 5, 2007
Neuroscientists Focus on Autism
Aug. 21, 2007
Schools Strive to Meet Needs of Autistic Students
Aug. 16, 2007
Parents Fight for Autism Insurance Coverage
Aug. 15, 2007
Public Schools Prepare to Educate Kids with Autism
June 28, 2007
Autism Poses Extra Obstacles for Blacks
June 14, 2007
Vaccines on Trial for Alleged Link to Autism
April 11, 2007
Parents of the Autistic Weigh Lifelong Care Options
April 5, 2007
Online Project Promotes Autism Research
March 15, 2007
Cause of Autism Narrowed Down to 100 Genes

Tuesday, December 11, 2007

ADA Disability Law and Policy- A National Audio-Conference

Tuesday December 18

2 - 3:30 pm EST

Speaker
Peter Blanck, JD, Ph.D, Chair, Burton Blatt Institute, Syracuse
University

Reviewing previous research efforts, this session sets out a
blueprint for the role of research, policy, and law in advancing the
civic, economic and social participation of persons with disabilities
in a global society. It reviews past public policy efforts and
research findings regarding workers with disabilities. It discusses
current and future research initiatives on the cutting edge of
promoting successful employment outcomes for people with
disabilities. The discussion presents promising research
methodologies in multidisciplinary field disability and employment
research. Finally, our presenter will put forth challenges and
opportunities for research, policy, and legal initiatives, framing a
blueprint for the next quarter century.

Cost per site (regardless of the number of participants at each site)
$25 for nonprofits, individuals and government agencies
$40 for businesses

Sessions are 90 minutes and delivered by telephone (call in to a toll
free phone number that you can access after you register).
Participants are in a "listen-only" mode until the question and
answer period. The sessions are offered real-time captioned on the web.

Audio conferences are a great way to get information without
traveling. You sit in your office or home or at any telephone and
call in. If you have a speaker phone invite your colleagues to
participate.

Registration is at www.ada-audio.org

If you have problems/questions with registration: the Great Lakes ADA
Center at 312-413-1407 voice/tty

Sunday, November 04, 2007

Pediatricians Recommending Autism Screenings before age two

There is a new movement in the pediatric field for earlier screening for autism.

A new Web site debuted in mid-October, offers dozens of video clips of autistic kids contrasted with unaffected children's behavior. That Web site was profiled on Good Morning America last week, and is sponsored by two nonprofit advocacy groups: Autism Speaks and First Signs. They hope the site will promote early diagnosis and treatment to help children with autism lead more normal lives.http://www.autismspeaks.org/

Tuesday, October 16, 2007

Partnering with Your Child's School: A Guide for Parents

The HSC Foundation, in partnership with George Washington
University's Graduate School of Education and Human Development,
offers a new resource for parents. The booklet available online
and in hard copy in English and in Spanish, is designed to help
parents of children who have been diagnosed with health or mental
health care needs to learn about available resources and to
develop a partnership with their children's schools. The booklet's
content has been reviewed and validated by groups of parents,
youth, and educators and is produced in partnership with the
Council for Exceptional Children and the National Association of
State Directors of Special Education.

For more information, go to:
http://www.hscfoundation.org/whatwedo/familysupports.php

Monday, October 08, 2007

Hapy Columbus Day!

Today is a Federal holiday-- with selected state, local offices and schools closed. You may want to debate the contributions of Christopher Columbus:

- he was trying to find a route to China, and thought he got to India
- modern history states didn't prove the world was flat-- that was the current thinking of the time
- he spread small pox to Native American tribes
- he owned slaves
- he died broke.

He did:

- expanded trade and the influence of Christianity
- made Europe aware there was another continent
- exported foods of the Americans (hot peppers, tomatoes) around the world.

Enjoy your day!

Monday, October 01, 2007

The 911 Modernization & Public Safety Act of 2007

This is important legislation, so that people who are deaf or hard of hearing can use IM and online technology to get 9-1-1 information. Let your Congressman know about this, and that they need to support it!
--------------------------


Emergency Issues: Disability Coalition supports H.R. 3403, The 911
Modernization and Public Safety Act of 2007

The Coalition of Organizations for Accessible Technology (COAT),
comprising over 120 national and local disability groups, sent a
letter of support to the Congressional sponsors of H.R. 3403, "The
911 Modernization and Public Safety Act of 2007." This
legislation, if enacted, will help ensure that people with
disabilities have equal access to 9-1-1 emergency public safety
answering points ("911 centers") as these centers start using
Internet technologies. For instance, barriers must be identified
and solutions implemented for devices and services that connect to
911 centers when using Internet Protocol (IP). The bill would
require also that telecommunications relay service providers must
be involved in the development of the new national 9-1-1 plan and
must have the same protections from liability and
nondiscriminatory access to 9-1-1 centers that currently protect
wireline and wireless telephone carriers.

The Disability Coalition letter can be found on the AAPD website
at http://www.aapd.com/News/tech/070921coat.htm

Action Step: To show support for this effort, please send a letter
to your Congressperson urging them to vote for H.R. 3403 because
of these important disability provisions.

More on the COAT coalition at http://www.coataccess.org

SOURCE: AAPD
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Online Survey to Improve Employment Program for Persons with
Significant Disabilities

NISH is asking our community to participate in its online survey
to obtain feedback on the awareness and familiarity of, as well as
preference for the AbilityOne (formerly Javits-Wagner-O'Day)
Program within the disability community. NISH is a national,
nonprofit agency that provides employment opportunities for people
who are blind or have other severe disabilities by procuring
Federal contracts for goods and services.

NISH encourages you to respond to this brief survey that takes
less than 8-10 minutes, at:
www.surveymonkey.com/s.aspx?sm=xZB5seGvfyekj1FXwNY1LA_3d_3d

The intent of the survey is to help NISH modernize the AbilityOne
program. In addition, NISH will use this feedback to help improve
customer service to the nearly 48,000 individuals with severe
disabilities working in the AbilityOne Program. An alternative
copy of the survey is also available in MS Word format; please
contact Rachel Kelly at (703) 584-3938 or rkelly@... for the
MS Word version of the survey.

NISH contact: Larissa Timmerberg, Director, Workforce Development
at (571) 226-4521 or ltimmerberg@...

Further information at NISH website at http://www.nish.org

SOURCE: AAPD

ADA Restoration Hearing Scheduled in House Judiciary Committee

ADA Restoration Hearing Scheduled in House Judiciary Committee

It's confirmed - the first hearing on ADA Restoration is scheduled
for NEXT THURSDAY, October 4 in the House Judiciary Committee.

If you're available, please plan on packing the room to show your
support! Alternately, the Committee's website indicates that there
will be a live webcast during the hearing into which you can
"tune" from wherever you are, if you're unable to come in person.

Here are the details from the House Judiciary Committee's website:

Thursday 10/04/2007
10:00 AM
2141 Rayburn House Office Building
Subcommittee on the Constitution, Civil
Rights, and Civil Liberties
Hearing on H.R. 3195, the "ADA Restoration Act of 2007"

*Information about the webcast is also available on the House
Judiciary Committee website at:
http://judiciary.house.gov/schedule.aspx
(click on October 4).

To read more about ADA Restoration, visit the ADA Restoration blog
at: www.adarestoration.blogspot.com

Sunday, September 30, 2007

The Upside of Autism

There is a good interview on NPR Speaking of Faith, that talks about the autism spectrum. The two parents talk about the family autistic traits, and how these traits lend themselves to specific career choices (i.e. science, computers, research, academia). Jennifer Elder and Paul Collins have a nice discussion on their child, and their insights on the autism spectrum.